Lead Beneficiary: MSCI (Poland)
Iwona Lugowska
Co-Lead: SoS (Sweden)
Mef Nilbert
Participants:
High contribution: MSCI, SoS, RSYD, UNICANCER, FPG, IPO Porto, KCCC, OIL, DKG, NIPH, PSCUH, NCI, IGICHP, RCSI, NITLD
Low contribution: PMSI, BS, KUL, VIB, UZA, IJB, VUB, BOCOC, FHF, NKUA, LU,VULSK, MUW, SAS, VHIO, CSGVA,ICO, LiU, REUH, NHRF, OOI, NCI, INC, MMCI, NKI, IBB, VHIO, CNIO, IDIVAL,KU Leuven, UERCG, NKIP, FSGT, IRCCS AOUBO
Objectives
This NoE aims to address the needs of patients with poor prognosis cancers and implement an action plan to enhance survival rates while maintaining a good quality of life.
The specific objectives are as follows:
- To organise NoE for pancreatic cancer and NoE for lung cancers, and, based on these experiences, develop a roadmap for further NoEs addressing public health priorities for PPC patients
- To support the development of clinical guidelines/pathways from early diagnosis to palliative care in the treatment process to promote high-quality cancer care and tackle cancer inequalities in Europe
- To promote novel translational research programmes to foster high-tech solutions and innovation in PPC
- To educate the community about PPC, proactively involve patient advocacy groups and stakeholders, and assist them in the wide dissemination of relevant information about PPC using educational tools or collaborative networks
- To collaborate with policymakers to promote optimised care and increase/facilitate access to innovation for individuals with PPC; to support the implementation of early access to diagnostics, care, and supportive/palliative care
- To ensure effective NoE PPC governance, dissemination, evaluation, and sustainability
- Synergies between various work packages of JANE-2 (in particular, WPs 2, 3, 6, 8, 9), other CSA/JA, scientific societies, and stakeholders will be also addressed.
Tasks
T5.1 PPC NoE (Task leader: RSYD)
T5.2 Clinical care and quality of life (Task leader: SoS)
T5.3 Research and Innovation (Task leader: UNICANCER)
T5.4 Education and training (Task leader: FPG)
T5.5 Policy and Patients’ engagement (Task leader: IPO Porto)
T5.6 Governance (Task leaders: MSCI, KCCC, OIL, DKG, NIPH)
