Lead Beneficiary: INT (Italy)
Participants:
High contribution: INT, ISNB, SCIENSANO, UNITO, NKUA, UNICANCER, NKI, UK-ESSEN, CUSL, ICO, HSE, HSJD, HSE, CRO- AVIANO, VHIO, MSCI, IGR, UGent, UKE LC: BOCOC, CHI, KBCSM, PMSI IO, BS, UZA, KU Leuven, IJB, KSCCC, OIL, FICAN, UKCL, KSCCC, CUSL, UHCZ, UKCL, NHRF
Objectives
The NoE on AYAs aims to be the network where healthcare professionals collaborate with NGOs, patient groups and relevant stakeholders about AYA with cancer and where collaboration between paediatric and adult cancer services will be strengthened to improve AYA care, from prevention to survivorship.
The specific objectives are:
⎯ To support the development of AYA dedicated program
⎯ To develop specific clinical recommendations on AYA-specific topics (e.g. age-specific psychosocial support, fertility) and different types of cancer across age groups
⎯ To promote cancer research in AYAs
⎯ To raise awareness of cancer in AYAs
⎯ To monitor AYA cancer epidemiology, leveraging what is available or underway
⎯ To define and promote dedicated training on cancer in AYA
⎯ To support Patient and Public Involvement and Engagement
Tasks
T11.1 NoE organigram and governance (Task Leader: ISNB)
T11.2 Development of AYA dedicated programs (Task Leader: SCIENSANO)
T11.3 Development of clinical recommendations on AYA specific topics and different type of cancer across age groups (Task Leader: UNITO)
T11.4 Development of training on cancer in AYA (Task Leader: NKUA)
T11.5 Promotion of clinical cancer research in AYA (access to clinical trials from early phase 1-2 up to phase 3) (Task Leader: UNICANCER)
T11.6 Monitoring AYA cancer indicators (Task Leader: NKI)
T11.7 Definition of the sustainability strategy for the NoE on AYA with cancer (Task Leader: UK-ESSEN)
